Journal of Shandong University (Health Sciences) ›› 2023, Vol. 61 ›› Issue (6): 92-102.doi: 10.6040/j.issn.1671-7554.0.2023.0228

• 公共卫生与和管理学 • Previous Articles    

A quality of life study based on subjective reports of the cleft lip and palate population in Central China

ZHANG Xinyu1, KUANG Wenying2, XU Jingyi1, YAN Jianan1, DING Yuzhe1, GUO Yanyu1, YUAN Wenjun2   

  1. 1.School of Stomatology Wuhan University, Wuhan 430079, Hubei, China;
    2.Department of Orthodontics I, The Stomatological Hospital of Wuhan University, Wuhan 430079, Hubei, China
  • Published:2023-06-06

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Abstract: Objective To assess the quality of life in the non-syndromic cleft lip and palate population aged 8-29 years and to explore its effects from the patients perspective. Methods A cross-sectional study was conducted using the CLEFT-Q scale to statistically describe the subjectively reported quality of life in 329 patients with non-syndromic cleft lip and palate who visited the Department of Orthodontics I of Stomatology Hospital of Wuhan University during Jun. 2021 and Dec. 2022. The patients were divided into subgroups according to gender, age, number of caregivers, number of siblings, subjective family social status(SSS), and unilateral/bilateral complete cleft lip and palate. The data were analyzed with multiple linear regression using SPSS 26.0 to analyze the factors influencing their quality of life. Results Correlation analysis showed that age had a significant effect on patients satisfaction with appearance(P<0.001); SSS had a significant effect on patients satisfaction with appearance(P<0.001), health related quality of life(HRQoL)(P=0.011), and satisfaction with facial function(P<0.022); there were significant differences in the quality of life in patients of different age groups(P<0.001). Multiple linear regression analysis showed that HRQoL, satisfaction with appearance, satisfaction with facial function, SSS and age had an effect on the quality of life. Conclusion The effects of HRQoL, appearance, facial function, and SSS on quality of life from a subjective perspective in patients with cleft lip and palate aged 8 to 29 years were positively correlated, with quality of life decreasing as patients aged. This is a quality of life study from the subjective perspective of patients with cleft lip and palate in Central China, which has shifted from a unidimensional to a multidimensional approach. In addition, clinicians should actively ask patients about their subjective evaluations on the basis of objective assessment of their condition and efficacy, so as to give targeted intervention plans to improve their quality of life comprehensively.

Key words: Cleft lip and palate, Subjective reports, Quality of life, Appearance, Facial function, CLEFT-Q, Satisfaction with life scale, MacArthur scale of subjective social status

CLC Number: 

  • R783.5
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